This is a writeup by Professor Dr. Ketna L Mehta, the Associate Dean Research of our college:-
The positives of the movie is that the film craft and direction is spectacular and flawless, the actors are more than convincing and this is the first movie on a spinal injured- a quadriplegic in Indian cinema. The images are real and flawless – the accident, topple from the bed, helplessness at the leaking roof, feeling the fresh air outdoors and many other such images.
A film is both a potent tool for transforming mindsets and can sometimes also don the role of weapons of mass destruction. We need the best in the industry to project and showcase more responsible cinema.
As a person with spinal injury and as the founder of our NGO, Nina Foundation I would not recommend this movie to my friends with spinal injury. I will elaborate this rationale:
1. Its a non- Indian take. The biggest motivating factor for a traumatic spinal injured is his ring of FAMILY. The entire family rallies around and forms a ring of support both physical and emotional. The independent living concept shown in the movie with Ethan living with only caretakers and caregivers is remote. More than one member of the family takes charge and enables one to sail through life happily.
2. We have glowing examples of Indian quadriplegics living with this life transforming disability for more than 12 years (the number in the movie). Maj HP S Ahluwalia, Rajendra Johar, Sruti Mohapatra, Subramaniam, Arvind Prabhoo, Nishant Khade, Abdulla and I can go on. They have families, friends and successful careers and goals and are leading successful lives.
3. Disability is a ‘untouchable’ ‘invisible’ taboo concept in India. The movie with its ending propagates this very concept. That a human being and his wishes are above the law? A disabled is better off ending his life? Obstacles and problems should taint our view about life? Spinal injury is too big a problem to live with?
4. Our NGO is attempting to create interest, involvement and inspiration amongst friends with spinal injury. Believe me its an uphill task. It takes hours and years to convince how to overcome our daily problems and yet lead a life of happiness and dignity. Guzaarish’s depressing tone nullifies that in three hours. Despite being financially independent (Ethan has written a book, has a radio show), he wants to end his life.
5. India is the capital of people with spinal injury, over 15 lacs and we add 20,000 every year. Most are ‘invisible’ as they are tucked away at home struggling to manage each day. How many can afford a 10 lac sip and puff wheelchair or tilt table in our country. The reason for being depressed is that there are no rehabilitation centres offering holistic services to face life. The rehabilitation at physical, psychological, social, vocational, recreational and spiritual levels prepare us to conduct our lives and also achieve a lot personally, professionally and in sports. (there is wheelchair tennis, basketball, quad rugby, swimming etc)
6. Alongwith the helplessness of rain falling on ethan’s face- there could have been more instances of enjoying the ‘fly on the nose’ moments. Spinal injury is a ‘real’ tough issue. Its not easy either living with paraplegia or quadriplegia. Yet it is hope which makes us rewrite medical books, push our limits, surprise our doctors and therapists. All the stakeholders work towards giving spunk back to our spines and this is a huge healthcare force. They too are disappointed by the treatment of the subject and ending of the movie.
7. And finally, Mr Bhansali, we don’t need euthanasia or suicides to end our lives in India. Poor management of bed sores, urine infections, bowel complications, osteoporosis, high cost of ventilators and medication, lack of trained attendants and caregivers and lack of world class rehabilitation centres anyway do the job, unfailingly. Even today in Bollywood land, Mumbai, we don’t have a world class spinal injury rehabilitation centre.
Charity is very easy, sponsoring a few spinal injured is simpler but getting involved with interest and inspiring our friends with spinal injury is the need of the hour. Imagine our children and young friends with spinal injury watching the movie with their devoted parents and families. The fact is that the very talented Mr Bhansali makes convincing movies on different aspects of disability; we would like positive role models conveying inspiring messages to face that one more day of our lives!
Dr Ms Ketna Mehta is founder of NGO Nina Foundation (www.ninafoundaiton.org)
5 comments:
i thought the movie was good...i disagree with all the points you put here..but let me just elaborate on one..its written we dont need euthanasia to end life in india!!!for goodness sakes the whole point in fighting for euthanasia is to save the diseased from dying from the causes mentioned here..
In a country like ours it is not surprising that "there are no rehabilitation centers offering holistic services to face life". Forget "rehabilitation", which means "to restore to good health..", we as a country haven't been able to create good health in the first place for the vast majority of our citizens.
I am not saying the work of NGO's like Nina Foundation is not relevant in a country like ours, these NGO's are playing a major role in bringing our country up, I am just saying that the reason they find their job daunting is not anyone's fault but rather it is the state of affairs here. With good work from all our part hopefully things will change.
Thanks dirm for your comment. But i dont agree with you.
It might be our biased view when you say "the whole point in fighting for euthanasia is to save the diseased from dying from the causes mentioned here..".
Why waste your energy to fight for euthanasia, when you can help improve the conditions in our country for these people?
The point is in spite of all these conditions, people suffering from such diseases do wanna live and enjoy their life. And its not easy. They need inspiration. And solution is not to end to life.
The movie might be good from the direction and acting point of view. But if you walk in the shoes of a person suffering from the same, you will know that it is not a happy feeling that you get at the end of the movie.
And i wanna correct you about one more thing, It was never said Nina foundation's work is daunting. But yes, the movie is discouraging to the people who suffer from the disease.
And also you don't have to agree with the points here, cos it is difficult to fully understand from the point of view of people who suffer, no matter how much we empathize.
lets agree to disagree here. Since this is not an issue i have any kind of direct exposure to, i cant argue. Looking forward to reading more from you.
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